dc.contributor.author | Koudelková, Kateřina | |
dc.contributor.author | Waldauf, Petr | |
dc.contributor.author | Wohl, Petr | |
dc.contributor.author | Šenkyřík, Michal | |
dc.contributor.author | Beneš, Petr | |
dc.contributor.author | Kohout, Pavel | |
dc.contributor.author | Vejmelka, Jiří | |
dc.contributor.author | Maňák, Jan | |
dc.contributor.author | Těšínský, Pavel | |
dc.contributor.author | Novák, František | |
dc.contributor.author | Meisnerová, Eva | |
dc.contributor.author | Fencl, Filip | |
dc.contributor.author | Gojda, Jan | |
dc.date.accessioned | 2024-07-04T12:45:47Z | |
dc.date.available | 2024-07-04T12:45:47Z | |
dc.date.issued | 2024 | |
dc.identifier.uri | https://hdl.handle.net/20.500.14178/2541 | |
dc.description.abstract | INTRODUCTION: Home parenteral nutrition (HPN) is the primary treatment modality for patients with chronic intestinal failure, one of the least common organ failures. This article provides a retrospective analysis of the data collected on HPN patients in the Czech Republic over the past 30 years. METHODS: National registry data was collected using a standardised online form based on the OASIS registry (Oley-A.S.P.E.N. Information System) across all centres providing HPN in the Czech Republic. Data collected prospectively from adult patients in the HPN program was analysed in the following categories: epidemiology, demographics, underlying syndrome, and diagnosis, complications, and teduglutide therapy prevalence. RESULTS: The registry identified a total of 1,838 adult patient records, reflecting almost 1.5 million individual catheter days. The prevalence of HPN has risen considerably over the last few decades, currently reaching 5.5 per 100,000 population. The majority of patients have short bowel syndrome and GI obstruction, with cancer being the most prevalent underlying disease. Catheter-related bloodstream infections have been the most prevalent acute complication. However, the incidence in 2022 was only 0.15 per 1,000 catheter days. The study also observed an increase in the prevalence of patients on palliative HPN over the last decade. CONCLUSION: This study presents a thorough analysis of data from the Czech REDNUP registry. It shows an increasing prevalence of HPN, namely in the palliative patient group. The sharing of national data can improve understanding of this rare condition and facilitate the development of international guidelines. | en |
dc.language.iso | en | |
dc.relation.url | https://doi.org/10.1159/000538232 | |
dc.rights | Creative Commons Uveďte původ 4.0 International | cs |
dc.rights | Creative Commons Attribution 4.0 International | en |
dc.title | The Czech Home Parenteral Nutrition Registry REDNUP: Comprehensive Analysis of Adult Patients' Data | en |
dcterms.accessRights | openAccess | |
dcterms.license | https://creativecommons.org/licenses/by/4.0/legalcode | |
dc.date.updated | 2024-08-19T21:46:04Z | |
dc.subject.keyword | home parenteral nutrition | en |
dc.subject.keyword | chronic intestinal failure | en |
dc.subject.keyword | national registry | en |
dc.subject.keyword | epidemiology | en |
dc.identifier.eissn | 1421-9697 | |
dc.relation.fundingReference | info:eu-repo/grantAgreement/MSM//LX22NPO5104 | |
dc.relation.fundingReference | info:eu-repo/grantAgreement/UK/COOP/COOP | |
dc.relation.fundingReference | info:eu-repo/grantAgreement/FN/I-FN/I-FNM | |
dc.relation.fundingReference | info:eu-repo/grantAgreement/FN/V-FN/V-VFN | |
dc.date.embargoStartDate | 2024-08-19 | |
dc.type.obd | 73 | |
dc.type.version | info:eu-repo/semantics/publishedVersion | |
dc.identifier.doi | 10.1159/000538232 | |
dc.identifier.utWos | 001243732800007 | |
dc.identifier.eidScopus | 2-s2.0-85194499161 | |
dc.identifier.obd | 646900 | |
dc.identifier.pubmed | 38471467 | |
dc.subject.rivPrimary | 30000::30300::30308 | |
dcterms.isPartOf.name | Annals of Nutrition & Metabolism | |
dcterms.isPartOf.issn | 0250-6807 | |
dcterms.isPartOf.journalYear | 2024 | |
dcterms.isPartOf.journalVolume | 80 | |
dcterms.isPartOf.journalIssue | 3 | |
uk.faculty.primaryId | 110 | |
uk.faculty.primaryName | 3. lékařská fakulta | cs |
uk.faculty.primaryName | Third Faculty of Medicine | en |
uk.faculty.secondaryId | 108 | |
uk.faculty.secondaryId | 109 | |
uk.faculty.secondaryId | 51 | |
uk.faculty.secondaryId | 53 | |
uk.faculty.secondaryId | 112 | |
uk.faculty.secondaryId | 52 | |
uk.faculty.secondaryName | 1. lékařská fakulta | cs |
uk.faculty.secondaryName | First Faculty of Medicine | en |
uk.faculty.secondaryName | 2. lékařská fakulta | cs |
uk.faculty.secondaryName | Second Faculty of Medicine | en |
uk.faculty.secondaryName | Fakultní nemocnice Hradec Králové | cs |
uk.faculty.secondaryName | University Hospital Hradec Králové | en |
uk.faculty.secondaryName | Všeobecná fakultní nemocnice v Praze | cs |
uk.faculty.secondaryName | Všeobecná fakultní nemocnice v Praze | en |
uk.faculty.secondaryName | Lékařská fakulta v Hradci Králové | cs |
uk.faculty.secondaryName | Faculty of Medicine in Hradec Kralove | en |
uk.faculty.secondaryName | Fakultní nemocnice v Motole | cs |
uk.faculty.secondaryName | Motol University Hospital | en |
uk.department.primaryId | 110 | |
uk.department.primaryName | 3. lékařská fakulta | cs |
uk.department.primaryName | Third Faculty of Medicine | en |
uk.department.secondaryId | 1520 | |
uk.department.secondaryId | 5000002601 | |
uk.department.secondaryId | 100010693530 | |
uk.department.secondaryId | 633 | |
uk.department.secondaryId | 100031149848 | |
uk.department.secondaryId | 929 | |
uk.department.secondaryId | 1685 | |
uk.department.secondaryId | 5000000008 | |
uk.department.secondaryId | 624 | |
uk.department.secondaryName | IV. interní klinika – klinika gastroenterologie a hepatologie 1. LF UK a VFN | cs |
uk.department.secondaryName | 4th Department of Medicine Department of Gastroenterology and Hepatology | en |
uk.department.secondaryName | IV. interní klinika - klinika gastroenterologie a hepatologie 1.LF a VFN | cs |
uk.department.secondaryName | IV. interní klinika - klinika gastroenterologie a hepatologie 1.LF a VFN | en |
uk.department.secondaryName | Pediatrická klinika 2. LF UK a FN Motol | cs |
uk.department.secondaryName | Department of Paediatrics, 2nd Faculty of Medicine and Motol University Hospital | en |
uk.department.secondaryName | Interní klinika 3. LF UK a FNKV | cs |
uk.department.secondaryName | Department of Internal Medicine 3FM CU and UHKV | en |
uk.department.secondaryName | Interní klinika 3. LF UK a FTN | cs |
uk.department.secondaryName | Department of Internal Medicine 3FM CU and UTH | en |
uk.department.secondaryName | III. interní gerontometabolická klinika | cs |
uk.department.secondaryName | 3rd Department of Internal Medicine – Metabolic Care and Gerontology | en |
uk.department.secondaryName | Pediatrická klinika | cs |
uk.department.secondaryName | Pediatrická klinika | en |
uk.department.secondaryName | III. interní gerontometabolická klinika | cs |
uk.department.secondaryName | The 3rd Depatment of Internal Medicine - Metabolic Care and Gerontology | en |
uk.department.secondaryName | Klinika anesteziologie a resuscitace 3. LF UK a FNKV | cs |
uk.department.secondaryName | Department of Anaesthesia and Intensive Care Medicine 3FM CU and UHKV | en |
dc.description.pageRange | 143-152 | |
dc.type.obdHierarchyCs | ČLÁNEK V ČASOPISU::článek v časopisu::původní článek | cs |
dc.type.obdHierarchyEn | JOURNAL ARTICLE::journal article::original article | en |
dc.type.obdHierarchyCode | 73::152::206 | en |
uk.displayTitle | The Czech Home Parenteral Nutrition Registry REDNUP: Comprehensive Analysis of Adult Patients' Data | en |